Monday, November 22, 2010

Had Blood drawn on Monday,   I received my 19th Tysabri infusion 2pm on Friday 11/19, also had MRI in a.m. She dug for vein because I stupidly forgot to get extra hydrogenated to raise my vein's. Still have a wonderful bruise. A woman a few beds across the room from me was screaming In pain when they were trying to find hers. She was receiving something to help for a problematic pregnancy or something.

Saturday, October 9, 2010

19th Tysabri infusion yesterday, all went well.  It was told to me Tysabri would nullify flu shot. They told me they would get a hold of my neurologist for clarification.

Saturday, August 28, 2010


I had my 17th Tysabri infusion yesterday, it's starting to feel routine.  Had a visit with my new neurologist, I think I going to really enjoy her.  Also a professor at UNM, so she very up to date.  The new neurologist also got the ball rolling on my Amphera prescription, She also showed me a better external cathater than the one I was contemplating.  She couldn't get it off the model it was mounted on so she started yanking on it and was saying "It's to sticky"  I manged not to to bust into laughter, but you got to admit it was very hilarious!

Saturday, July 17, 2010


17th Tysabri Infusion yesterday.  Went well.  Fell asleep the first hour.  Staff was exited that I changed my Neurologist to Dr. Edmunds.. Many went to a presentation of her's at UNM and thought she was very upbeat and knowledgeable.  That makes me exited and happy.

Wednesday, June 9, 2010

Late entry: June 4 had my 15th Tysabri infusion.  Every thing went well.

Saturday, April 24, 2010

4/22/10, Thursday, on earth day :-/ saw my neurologist in Colorado Spring, we discussed my MRI, and I read the report, and view the photos.  The number of lesions on my brain had decreased significantly as compared to the previous MRI and atrophy slowed, praise God indeed, thanks for your prayers!  Also received a prescription for Ampyra recently approved by the FDA to help  gait and cognition,  I had researched Ampyra on the MS society's web page and the FDA report.  The doctor prescribed it to me and I should hear fron the manufacturer in 3-4 weeks.  I also had my 14th Tysabri infusion on Friday.

Thursday, April 8, 2010

Had my millionth MRI today, got  pictures and a cool CD!  I should get a frequent rider discount!!

Saturday, March 13, 2010

14th Tysabri infusion yesterday.  She couldn't get the vein in the left arm, I nearly passed out.  Got he vein in the right arm just fine.  Kathy then wanted to go shopping.  She also wanted to go to Cracker barrel at 9:30 pm, we got home at 1am this morning!  The kitten woke us at 7am by destroying the lamp by her bed.  Tysabri, and the prior two events leave me wiped out.

Saturday, February 13, 2010

Finished Tysabri Infusion 12 yesterday with no hitches. Still have awfull thrush.

Friday, January 15, 2010

Saw Docotor Fodor in Colorado Springs yesterday, She said my blood work looked excelent! Had my 11th Tysabri infusion today, got last minute approval from my new heath insurance carrier, whew, that was close! a lot of time on the road the last few days, really saps whats left of my strength... Still enjoyable to see ...God's beutiful creation! I'm sure God is thinking "you haven't seen any thing yet!!"