Friday, January 30, 2009

Had the pleasure of talking with Normae at the Colorado Springs site. She was the one responsible for getting the drugs delivered to me and have the visiting nurses serve me, all with insurance approval, WOW. She doesn't even live here! She said of my major inability to walk, it could take up two weeks to see any improvements. She also had to change my next appt. from Feb 13 @ 1:30 to Feb 12 at 2pm. I guess I'll have to take a day of vacation.

Thursday, January 29, 2009

Did my full 9hr day! Not to much weakness....

Wednesday, January 28, 2009

Made it 7hrs today! Must be getting a little better!

Tuesday, January 27, 2009

Went to work 5hrs. today. woo hoo!

Monday, January 26, 2009

Only made 4 hrs of work today, couldn't walk. Better than nothing!

Saturday, January 24, 2009

1st infusion went well at 8:30am, IV categorization held loosely enough. Just need one last one tonight then I'm done with this series. I hope it helps, could be up to three days, I am just very fatigued now, and wobbly, will update after next infusion. Picture of the last of the 10 infusions! Went well!

Friday, January 23, 2009

Yesterday my IV catheter came, loose so all the medications went sub Q. Nurse came and noticed my arm was swollen but said the medications would absorb normally, just slowly. I was due to have catheter change today, and after four attempts here at home went to visiting nurses up town, and three more attempts got a loose one in and gave myself a bag-o-medications. Hope it hold thru Saturday night, my last treatment. Obladi-Oblada!

Tuesday, January 20, 2009

Started the first of my bi-daily solu-medrol treatments AT HOME today. Visiting nurses taught me how to do it myself and I will do this on my own for 5 days. An old friend is coming tonight to see if I learned how, Heidi Bjorklund!! Should be a pleasure. Since it is a larger dose than I am used to and am now taking Valium, a muscle relaxant, stayed home from work today. Took a test drive around White Rock, and was glad I made the decision to stay home!

Saturday, January 17, 2009

Went to Colorado Springs yesterday. Left at 5:50am returned at 11:05pm, long day! Neurologist didn't do much, confirmed I was in the middle of a relapse and prescribed a 5 day course of solu-medrol, a strong steroid, with an oral taper. I think this relapse started on 1/14/09, The MRI showed active lesions on my brain. I was also prescribed Valium to augment the Baclofen used to treat the stiffness that is mainly in my left leg. She didn't discuss my c-spine, and we are still deciding on what I should do next. I also forgot to request a copy of my blood work, Doc seemed to be concerned with it but didn't elaborate other than to say I needed to drink more water. I will request copies on Tuesday. I felt the long day really didn't accomplish much. Contemplating if there is a neurologist as competent as her closer to home, I think that would benefit both sides of the equation. I seemed to be a major inconvenience to them yesterday.

Tuesday, January 13, 2009

Had blood drawn here in Los Alamos for Friday's appointment in Colorado Springs on Monday. I was assured results would be faxed by my Friday's appointment. It Was for Thyroid, B12, and CBC.

Tuesday, January 6, 2009

I made an appointment with my neurologist in Colorado Springs today for 1/16/09 at 3pm. I have an MRI at 12:30. My last MRI was from '02. She would like the neurologist at the imaging site to do a write up of it, then, have me bring the films to her office so we can go over them together. We will also discuss what's next for me. I am also to take my '02 MRI pics for comparison, aught to be interesting. I had some atrophy then, will see if I have anything left! I was told she would like to get me on Tysabri as soon as possible, we'll see.

Thursday, January 1, 2009

Noticed, after wearing ear plugs, my ears are packed with wax! I am going to try to clean them thoroughly today... I know you wanted to read That!!