Saturday, January 17, 2009
Went to Colorado Springs yesterday. Left at 5:50am returned at 11:05pm, long day! Neurologist didn't do much, confirmed I was in the middle of a relapse and prescribed a 5 day course of solu-medrol, a strong steroid, with an oral taper. I think this relapse started on 1/14/09, The MRI showed active lesions on my brain. I was also prescribed Valium to augment the Baclofen used to treat the stiffness that is mainly in my left leg. She didn't discuss my c-spine, and we are still deciding on what I should do next. I also forgot to request a copy of my blood work, Doc seemed to be concerned with it but didn't elaborate other than to say I needed to drink more water. I will request copies on Tuesday. I felt the long day really didn't accomplish much. Contemplating if there is a neurologist as competent as her closer to home, I think that would benefit both sides of the equation. I seemed to be a major inconvenience to them yesterday.
Tuesday, January 13, 2009
Tuesday, January 6, 2009
I made an appointment with my neurologist in Colorado Springs today for 1/16/09 at 3pm. I have an MRI at 12:30. My last MRI was from '02. She would like the neurologist at the imaging site to do a write up of it, then, have me bring the films to her office so we can go over them together. We will also discuss what's next for me. I am also to take my '02 MRI pics for comparison, aught to be interesting. I had some atrophy then, will see if I have anything left! I was told she would like to get me on Tysabri as soon as possible, we'll see.
Thursday, January 1, 2009
Wednesday, December 31, 2008
Monday, December 29, 2008
Saturday, October 25, 2008
OLTERMS Timeline
• Friday 5/9/08 Last Phase IIb Visit, First ext. study visit. Did MRI, peg test, math test, speed walk test, pee, MSQLI, and 13 vials of blood. EDSS 2.0!?!
• 5/27/08 Received notice I’m MRTC positive from 5/9/08 appt. awaiting blood draw appt.
• 7/2/08 Opexa called for med. survey, said Life Blood Biologic would call within a week for the big blood draw appt.
• 7/17/08 2pm Blood procurement to make vaccine.
• 9/10/08 Got call that vaccine ready.
• Made appt. for 10/10/08 1:30pm appt to receive 1st vaccine.
• 9/16/08 appt for vaccine delayed indefinitely due to hurricane Ike’s impact on Houston.
• 9/25/08 Made new date for first shot, 10/24/08 1:30pm
• 9/31/08 Found out I was on Tovaxin during the study.
• 10/24/08 1st Tovaxin shot of OLTERMS. 17 Vials of blood, Pee. No MRI.
• 11/21/08 2nd Tovaxin shot of OLTERMS. No Blood, No Pee, No MRI. Just Shot.
• 11/24/08 OLTERMS shut down. :-(
• Friday 5/9/08 Last Phase IIb Visit, First ext. study visit. Did MRI, peg test, math test, speed walk test, pee, MSQLI, and 13 vials of blood. EDSS 2.0!?!
• 5/27/08 Received notice I’m MRTC positive from 5/9/08 appt. awaiting blood draw appt.
• 7/2/08 Opexa called for med. survey, said Life Blood Biologic would call within a week for the big blood draw appt.
• 7/17/08 2pm Blood procurement to make vaccine.
• 9/10/08 Got call that vaccine ready.
• Made appt. for 10/10/08 1:30pm appt to receive 1st vaccine.
• 9/16/08 appt for vaccine delayed indefinitely due to hurricane Ike’s impact on Houston.
• 9/25/08 Made new date for first shot, 10/24/08 1:30pm
• 9/31/08 Found out I was on Tovaxin during the study.
• 10/24/08 1st Tovaxin shot of OLTERMS. 17 Vials of blood, Pee. No MRI.
• 11/21/08 2nd Tovaxin shot of OLTERMS. No Blood, No Pee, No MRI. Just Shot.
• 11/24/08 OLTERMS shut down. :-(
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