Tuesday, January 20, 2009
Started the first of my bi-daily solu-medrol treatments AT HOME today. Visiting nurses taught me how to do it myself and I will do this on my own for 5 days. An old friend is coming tonight to see if I learned how, Heidi Bjorklund!! Should be a pleasure. Since it is a larger dose than I am used to and am now taking Valium, a muscle relaxant, stayed home from work today. Took a test drive around White Rock, and was glad I made the decision to stay home!
Saturday, January 17, 2009
Went to Colorado Springs yesterday. Left at 5:50am returned at 11:05pm, long day! Neurologist didn't do much, confirmed I was in the middle of a relapse and prescribed a 5 day course of solu-medrol, a strong steroid, with an oral taper. I think this relapse started on 1/14/09, The MRI showed active lesions on my brain. I was also prescribed Valium to augment the Baclofen used to treat the stiffness that is mainly in my left leg. She didn't discuss my c-spine, and we are still deciding on what I should do next. I also forgot to request a copy of my blood work, Doc seemed to be concerned with it but didn't elaborate other than to say I needed to drink more water. I will request copies on Tuesday. I felt the long day really didn't accomplish much. Contemplating if there is a neurologist as competent as her closer to home, I think that would benefit both sides of the equation. I seemed to be a major inconvenience to them yesterday.
Tuesday, January 13, 2009
Tuesday, January 6, 2009
I made an appointment with my neurologist in Colorado Springs today for 1/16/09 at 3pm. I have an MRI at 12:30. My last MRI was from '02. She would like the neurologist at the imaging site to do a write up of it, then, have me bring the films to her office so we can go over them together. We will also discuss what's next for me. I am also to take my '02 MRI pics for comparison, aught to be interesting. I had some atrophy then, will see if I have anything left! I was told she would like to get me on Tysabri as soon as possible, we'll see.
Thursday, January 1, 2009
Wednesday, December 31, 2008
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