Tuesday, January 20, 2009

Started the first of my bi-daily solu-medrol treatments AT HOME today. Visiting nurses taught me how to do it myself and I will do this on my own for 5 days. An old friend is coming tonight to see if I learned how, Heidi Bjorklund!! Should be a pleasure. Since it is a larger dose than I am used to and am now taking Valium, a muscle relaxant, stayed home from work today. Took a test drive around White Rock, and was glad I made the decision to stay home!

Saturday, January 17, 2009

Went to Colorado Springs yesterday. Left at 5:50am returned at 11:05pm, long day! Neurologist didn't do much, confirmed I was in the middle of a relapse and prescribed a 5 day course of solu-medrol, a strong steroid, with an oral taper. I think this relapse started on 1/14/09, The MRI showed active lesions on my brain. I was also prescribed Valium to augment the Baclofen used to treat the stiffness that is mainly in my left leg. She didn't discuss my c-spine, and we are still deciding on what I should do next. I also forgot to request a copy of my blood work, Doc seemed to be concerned with it but didn't elaborate other than to say I needed to drink more water. I will request copies on Tuesday. I felt the long day really didn't accomplish much. Contemplating if there is a neurologist as competent as her closer to home, I think that would benefit both sides of the equation. I seemed to be a major inconvenience to them yesterday.

Tuesday, January 13, 2009

Had blood drawn here in Los Alamos for Friday's appointment in Colorado Springs on Monday. I was assured results would be faxed by my Friday's appointment. It Was for Thyroid, B12, and CBC.

Tuesday, January 6, 2009

I made an appointment with my neurologist in Colorado Springs today for 1/16/09 at 3pm. I have an MRI at 12:30. My last MRI was from '02. She would like the neurologist at the imaging site to do a write up of it, then, have me bring the films to her office so we can go over them together. We will also discuss what's next for me. I am also to take my '02 MRI pics for comparison, aught to be interesting. I had some atrophy then, will see if I have anything left! I was told she would like to get me on Tysabri as soon as possible, we'll see.

Thursday, January 1, 2009

Noticed, after wearing ear plugs, my ears are packed with wax! I am going to try to clean them thoroughly today... I know you wanted to read That!!

Wednesday, December 31, 2008

Walking much better. Woke with numbness on right ear again, but walking o.k I suppose.

Monday, December 29, 2008

12/28/08 Woke with numb right ear, some hearing loss. Walking bad, missed church. Have been getting 5-6 hrs sleep due to me forgetting a refill of a perscription.